Equity, Trust, and Power in Partnerships
Live Interactive Workshop
Sharing Patient Experiences With Respect, Dignity, and Responsible Representation
Stories must honor lived experience
Dignity, Ethics & Responsible Storytelling
Patient stories are powerful tools for advocacy, awareness, and research engagement. However, sharing these stories requires thoughtful attention to dignity, consent, and representation.
In this 75-minute interactive workshop, nonprofit and patient advocacy leaders will explore how to share patient stories in ways that respect lived experience and protect community trust.
👥 Who Should Attend
- Non profit Leaders
- Patient advocacy organizations
- Communications and advocacy professionals
💡 What You’ll Gain
- Ethical frameworks for sharing patient stories
- Strategies for protecting dignity and consent
- Guidance for balancing storytelling with advocacy
- Tools for responsible narrative development
FAQ
Yes. The session focuses on responsible approaches to sharing lived experiences.
Yes. The workshop is specifically designed for those organizations.